It looks like a bump with bruising. The Pediatricians said it would probably go away. Well, fast forward 6 wks later- still there. Again we asked the Pediatricians and they weren’t worried about it. We, however wanted to get some reassurance that we could get it to go away! Kids can be cruel and we don’t want her to be “the little girl who looks like she got punched in the nose”. So we asked for a referral to a dermatologist.
We ended up going to a dermatologist that my cousin recommended actually, and as a side note let me add that upon meeting the Dr., I think me, my 73 yr old grandmother and probably even Princess all have a bit of a crush on him lol… thats ok right? haha Anyway, he said its a Hemogiona. (something like a strawberry but growing on the inside instead of big and red on the outside) He said it goes away on its own but will grow before it goes away (GREAT!)… and being that its so close to her eye he wants us to consider putting her on Steroids to slow the growth.
He’s sending us to a conference to get some other expert opinions at Mt. Sini and also sent us for a sonogram. He never really explained the sonogram, just gave the referral. Then the day I scheduled it I learned what he was screening her for exactly. One disease called Phaces Syndrome and another called Sturge Webber syndrome. I will not go into the details you can Google it on your own but I will say I believe Googling illnesses should be outlawed. It is not good, my friends. NOT. GOOD.
Googling any kind of ailment can make you think that the headache you have after a night of drinking is a sign of a brain tumor! Its craziness, and that information should just not be that easily accessible– at least not to neurotic mamas like me!
I was in a state of panic for over a week while we waited for today’s appointment and even changed pediatricians because I’m SO annoyed they did not think to screen her for these things sooner, and didn’t event give a sense of urgency to go to a specialist to look at it.
Thankfully, everything came back A-Ok! He didn’t see any growth or movement in the marking so we chose to wait til’ after the conference to start the steroids. I’m secretly hoping it disappears before then, although I know its unrealistic.
And although I am definitely thankful and feel blessed to have her in good health and in the care of the best Doctors out there, I am must confess that I am less than thrilled with the every-2-wk follow up necessary, even if the Doctor is eye candy.
